This is My Life

yogapantsgirl: [Image description: YPG is on the floor...

Sun, 12 May 2013 07:19:01 -0400

[Image description: YPG is on the floor laughing. A woman in hospital scrubs says “All I asked was if you were taking any medications.”

The caption reads: “Chronic illness amusements: New people at your doctor’s office.”]

Am I on any medications? Oh bless your heart!

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Sun, 12 May 2013 07:13:03 -0400

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Sun, 12 May 2013 07:11:25 -0400

thecvsgirl: chronic illness awareness!

Sun, 12 May 2013 07:05:01 -0400

thecvsgirl:

chronic illness awareness!

I hate this

Thu, 02 May 2013 07:01:27 -0400

I keep getting my hopes up, maybe something good will happen. I get all excited and than it doesn’t happen. I Think I should just stop trying. I feel like I always go out of my way to do nice things/help/accommodate my friends and I feel like its not reciprocated. Ugg.

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Thu, 02 May 2013 06:55:12 -0400

Whimsical Serendipity: Any suggestions on how to succeed at college with a chronic illness?

Mon, 22 Apr 2013 15:04:44 -0400

Whimsical Serendipity: Any suggestions on how to succeed at college with a chronic illness? :

ichigopocky:

purpleviolin91:

justmakethepainstop:

I’m going to talk to the disabilities office, but I’m not sure what help they are really going to be able to give me.

i try to let my professors know about my illnesses right away and the possible implications of them. This way…

THANKS !!!!!!

Quilts and Queers: Any suggestions on how to succeed at college with a chronic illness?

Mon, 22 Apr 2013 15:03:37 -0400

Quilts and Queers: Any suggestions on how to succeed at college with a chronic illness? :

chronic-illness-and-pain-support:

justmakethepainstop:

I’m going to talk to the disabilities office, but I’m not sure what help they are really going to be able to give me.

I don’t really have the spoons to give a thorough answer to this today, but I will direct you here for now….

THANK YOU SO MUCH!!!!!

POTS: Not the Illegal Kind: Any suggestions on how to succeed at college with a chronic illness?

Mon, 22 Apr 2013 15:01:53 -0400

POTS: Not the Illegal Kind: Any suggestions on how to succeed at college with a chronic illness? :

tamingthebigbadwolf:

quiltingqueer:

chronic-illness-and-pain-support:

justmakethepainstop:

I’m going to talk to the disabilities office, but I’m not sure what help they are really going to be able to give me.

I don’t really have the spoons to give a thorough answer to this today, but I will direct…

Know your priorities, that’s very important. When I have a lot of energy, I study. Also, know your boundaries. It’s dangerous to take on too much work because it will only make it harder for you and cause stress (which will make you more tired etc). It comes down to this: do what you want to do but don’t forget about your body. Your illness shouldn’t overtake your life but you shouldn’t ignore it either.
Good luck! :) xx

Thanks! So far through high school I’ve managed balancing work play and rest! Hopefully I will be able to do the same at college!

inthemidstofallthismadness: I think that there should be a body swap day for any chronically ill...

Mon, 22 Apr 2013 14:58:03 -0400

inthemidstofallthismadness:

I think that there should be a body swap day for any chronically ill patient who has ever been doubted by am ableist asshole. Then those who have been told to “just push past it” can watch as the ignorant jerks have a lovely time, “getting over it”.

Please!!!

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Mon, 22 Apr 2013 14:55:53 -0400

I wish…

Mon, 22 Apr 2013 14:55:28 -0400

I wish…

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Fri, 12 Apr 2013 07:27:26 -0400

I am weird.

Sat, 06 Apr 2013 16:52:55 -0400

crystal-gazer:

Sometimes I dont like to take muscle relaxers/pain medicine because it makes my pain go away….
You are probably like.. “Duh wtf, thats the whole point!!”

But when I take one and I am not in pain, it makes me wonder if I was ever really in pain. And maybe I really am just imagining it.

At least when I am in pain there is no question that it is actually there.
I dont know.

Am I the only one who thinks like this?

Yes. I convince myself all the time I am making the pain up. Even though. I’m pretty sure that’s not true.

Any suggestions on how to succeed at college with a chronic illness?

Sat, 06 Apr 2013 16:47:32 -0400

I’m going to talk to the disabilities office, but I’m not sure what help they are really going to be able to give me.

I’ve been talking to this girl lately who I maybe sort of like?( I’m not really sure)...

Sat, 06 Apr 2013 16:34:41 -0400

I’ve been talking to this girl lately who I maybe sort of like?( I’m not really sure) but she’s been very forth coming about a lot of things with me (abuse, eating disorder, family issues ect) and I feel like I need to tell her about my issue but I’m not ready for that yet. Even friends I’ve been close with for years don’t know the whole truth about my condition. But I feel like I should like she’s pressuring me but I don’t think she’s doing it on purpose. I don’t want her to think its one sided…. Hajj

How I spent my New Years Eve

Tue, 01 Jan 2013 10:37:48 -0500

In my pajamas
with my family
with a lovely cocktail of apple juice and miralax
sleeping, by 9:00

hope all my fellow spoonies had as great a new years eve as i did :P

YOU WENT TO MHNI?! I'm going there in a week. How was it? What happened? I'm kind of nervous because I dont know what they're going to do. Did you have to be put in inpatient?

Sun, 02 Dec 2012 08:46:21 -0500

Are you going to the clinic for the first time? The doctors and nurses there are really nice. If its your first appointment, then you basically sit there all day seeing different doctors, the phyciatrist, physical therapist, nurse practitioner, and then the neurologist. They also do testing (ekg, eeg and blood work) bring a book and a snack! Depending on your situation they may suggest the inpatient treatment. They did for me, depending on insurance and how full the program currently is you may go right from the clinic to the hospital but you also might schedule a date in the next month or so to go. The hospital program is the nicest I’ve ever been to. Instead of just pumping you with drugs for 2 weeks, they also have support groups with the other patients and also learning about the condition and treatments. Every morning you meet with dr. saper (the head neurologist at the hospital) and the nurses and nurse practitioners. you talk about how the previous day was and any concerns you have and than based on what you tell them, they modify your treatment plan. So that was a lot of stuff i just said… I probably forgot some stuff but i hope this helps. If you have anymore questions just ask!

Update on my life.

Sat, 01 Dec 2012 20:30:07 -0500

I haven’t been posting things for a while and I don’t really know why….

I was in the hospital for 3 weeks over the summer for migraine treatment (at MHNI) which didn’t do a whole lot, but they gave me a perscription for torodol shots which are awesome! but I can only use them 3 times a week. but even so, my thighs are covered with a lovely looking combonation of bruises from the shots.
My physical therapist told me I have Joint-hypermobility-syndrome (JSH).
I think it might be Ether Danlos though, just a hunch because of other symptoms I have that are not present in JHS.
My wisdom tooth got infected, so I couldn’t eat for a while. And now I get to have my wisdom teeth out next week! yay.
I messed something up in my left wrist, either dislocation, sprain tendonitis or a combonation of them.

Yay medical problems.

I am so glad I've finally found someone else with chronic migraines on tumblr! Lately I've been in need of finding someone who is like myself. I'm 15 and have had chronic migraines for almost 4 years now. If you could suggest any other good blogs to follow with more younger people suffering from chronic migraines I would be so thankful!

Mon, 01 Oct 2012 15:19:45 -0400

most of the other chronic migraine people i know of are older, but there are alot of younger people with other chronic pain/chronic illnesses, i track the tags, chronic pain, migraine and chronic illness, and thats how i found alot of the people like me. also, im always here to talk!! I’ve had daily migraines for 4 years and chronic for 7 so, i know my migraines and how to cope…most of the time :)